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Palliative Care Measures

Stratis Health tested a set of rural relevant, community-based quality measures, based on the National Quality Forum endorsed measures for palliative care. This initial set of measures may be helpful for programs and external parties to evaluate the quality of care provided to palliative care patients.

Palliative Care Measures Tool Manual. READ ME FIRST. The manual outlines how to download and use the data collection tools. (8-page PDF)

Patient and Family Experience Survey. An adapted version of the National Hospice and Palliative Care Organization's Family Evaluation of Palliative Care Survey. Modified so that it can be given to either patients or family. (1-page Word doc)

Patient-level Clinical and Utilization Data Collection Tool. An Excel-based tool. Users enter patient-level chart data and the tool automatically calculates clinical, utilization, and demographic measures. (8-worksheet Excel spreadsheet)

  • Data Dictionary. Definitions for each data element collected in the tool. (11-page Word doc)
  • Data Abstraction Form. Data collection form that can be used when abstracting information from medical records for entry into the Excel-based tool. (4-page Word doc)

Webinar: Measures for Rural Palliative Care Programs. The results of a study to identify and field-test a set of quality measures that reflect clinical quality, cost and efficiency, and the patient and family experience. Presented by Stratis Health's Laura Grangaard Johnson and Karla Weng. Rural Palliative Care Networking Group. (56-min webinar) Slides (34-page PDF)

Stratis Health palliative care measures pilot

Stratis Health conducted a palliative care measurement pilot in 2012 to help identify a common set of performance measures appropriate for community-based palliative care services in rural communities.

Existing palliative care quality measures had primarily been tested in urban and hospital-based programs. This project tested a set of rural relevant, community-based quality measures, based on the National Quality Forum endorsed measures for palliative care. Measures fell into four topic areas: operations, cost, clinical quality, and patient/family experience.

Five volunteer pilot sites were provided training on the measures and data collection tools and submitted data quarterly for calculation of the measures. Pilot sites were provided quarterly comparison data reports and participated in exit interviews after the final data submission period. This work was supported by UCare.